Welcome and thank you for choosing to help us with our work!
This survey is designed to understand how the pandemic has affected children who have Down Syndrome by asking parents/carers about their child's experiences. The project was developed by University College London in partnership with the Down Syndrome Association and the Trisomy 21 Research Society, and is led by Professor Monica Lakhanpaul.
In order to take part, you must be:
- Over 18
- Resident in the UK
- Live with a child who has Down Syndrome aged 11 or under
Please read the following information carefully. If there is anything that is not clear or if you would like more information, feel free to contact us at l.swabey@ucl.ac.uk.
Definitions:
The use of the term “your child” specifically refers to your child who has Down Syndrome.
Pandemic: March 2020 – present day
Data and consent
All your answers will remain anonymous under UK Data Protection Laws and will be stored securely on encrypted UCL servers. If a question does not apply to your situation or you are uncomfortable answering, skip to the next question. Please remember to click "submit" at the end of the survey to confirm your responses. You are also free to quit the survey at any time.
By submitting this survey, you are consenting for this information to be used for research purposes.
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To save your responses and end the survey, click the 'End Survey' button below. If you have selected the wrong option by accident and/or wish to return to the survey, click the 'Return and Edit Response' button.